Oral Presentation Biobanking - Blue Sky Horizons (ABNA 19th Annual Conference)

Using video media as an information and consent tool (#13)

Rebecca Komesaroff 1 2 , Alexandra Robertson 2 3 , Magdalena McGuire 2 , Sophie Gatenby 2 , Nitya Phillipson 3 , David Eisenstat 3 4 , Jennifer Munro 2 , Louise E Ludlow 3 4
  1. SKILLED Internship Program, Victorian Comprehensive Cancer Centre, Parkville, VIC, Australia
  2. Research Ethics & Governance, The Royal Children’s Hospital, Parkville, VIC, Australia
  3. Murdoch Children's Research Institute, Parkville, VIC, Australia
  4. Children’s Cancer Centre, The Royal Children’s Hospital, Parkville, VIC, Australia

The Children’s Cancer Centre (CCC) Biobank at the Royal Children’s Hospital (RCH) and Murdoch Children’s Research Institute was established in 2014 and represents a valuable collection of biological specimens linked to health information contained in hospital medical records. Each year approximately 180 participants and their guardians offer consent to donate their tissues and data to advance paediatric cancer research. 

 

International studies have established the benefits of communicating medical information and informed consent using video media amongst both paediatric and adult populations1,2,3. Further, videos enhance comprehension amongst those with reading difficulties and linguistically diverse communities4,5. There is a high degree of technological device ownership and literacy amongst Australian children and teenagers6,7. Research on the efficacy of information and consent videos amongst Australian paediatric patients is limited. In November 2021, the CCC Biobank launched a video to assist in the consent process (https://www.youtube.com/watch?v=IHZPmiDvGls). This video received approval by the RCH Human Research Ethics Committee and was produced by Sathana Dushyanthen of Science in Motion. 

 

The attitudes and perceptions towards the CCC Biobank video amongst both CCC clinicians/researchers and patients/guardians who consented to the CCC Biobank were assessed.  Approximately 100 patients/guardians who consented to the CCC Biobank since the video launch received a text based survey and approximately 30 CCC researchers/clinicians received a personalised survey via email. Participation was voluntary and completely confidential. Feedback received on the video offered an opportunity to determine whether videos in general are an effective communication tool to inform patients/guardians about research and facilitate the informed consent process. The secondary objective gauged researcher/clinician interest in an evidence-based video development toolkit to provide practical advice on creating videos for any research project on campus. 

 

*Equal contribution:  Jennifer Munro and Louise E Ludlow

  1. 1. Occa, A., & Morgan, S. E. (2019). Animations about clinical trial participation for cancer patients and survivors. Journal of health communication, 24(10), 749-760.
  2. 2. Occa, A., Stahl, H. M., & Julien-Bell, S. (2022). Helping Children to Participate in Human Papillomavirus–Related Discussions: Mixed Methods Study of Multimedia Messages. JMIR Formative Research, 6(4), e28676.
  3. 3. Fissler, S., & Ryan, M. (2016). G226 (P) Information videos for use within the Paediatric Emergency Department.
  4. 4. Franceschini, S., Bertoni, S., Ronconi, L., Molteni, M., Gori, S., & Facoetti, A. (2015). “Shall we play a game?”: Improving reading through action video games in developmental dyslexia. Current Developmental disorders reports, 2(4), 318-329.
  5. 5. Ali Batel, E. (2014). The Effectiveness of Video vs. Written Text in English Comprehension and Acquisition of ESL Students. Arab World English Journal, 5(4).
  6. 6. Screen time and kids: What’s happening in our homes? Australian Child Health Poll, The Royal Children’s Hospital (2017) Retrieved 05 May 2022 from https://www.rchpoll.org.au/wp-content/uploads/2017/06/ACHP-Poll7_Detailed-Report-June21.pdf
  7. 7. Young people and social media usage, eSafety Commissioner Poll, Australian Government (2018) Retrieved 05 May 2022 from https://www.esafety.gov.au/research/youth-digital-dangers/social-media-usage